Thursday, April 30, 2009
In Memory
Wednesday, April 22, 2009
All good things.
Saw my medical oncologist today. Special thanks to Michelle B. and the boy's for the ride. Just a routine follow up to check on me and make sure all is going as planned. Blood counts were fine and the weight was up from my last appointment with him. All and all a good visit that had me in good spirits afterward. He scheduled a CT scan for me on the date that I get my PET scan results. The reason for that is a CT scan will be to actually give him a idea of weather or not there is anything left inside my tonsil area. He especially wants to see if there is any lymph node tissue still left in there. He suspects the tumor is gone, just obliterated from the radiation. If any lymph node tissue is still there, and is larger then one centimeter, it will have to come out, although he does not foresee that being a issue with me. The PET scan looks for cancer cells only, where the CT is more like a 3-D X-ray, if that makes any sense. I do not know how else to explain the difference in the two types of scans I will be having other than that. All I can do is hope they both come back clean.
My condition improves with each couple of days as well as my attitude. I got out of the house last weekend and enjoyed a small parade close to home with Isabella. I think it helps to get out and to try and start doing some normal things. I curse the Georgia pollen though, allergies are one thing I do not need on top of everything else going on. I can now get some water down and had some ice cream the other day. My throat seems to improve each day and the doctor said I should start attempting soft foods, such as eggs. We have become excited enough to start talking about what type of vacation to take this summer for a sorta of celebration if all goes well. I hope we are not getting ahead of ourselves, but it helps to remain optimistic and to look forward to something. Right now that would be a trip in late August to Colorado thanks to a offer from old friend Lauren Mitchell to use her condo. After seeing the info on the place, it was a offer we thought was to good to let go by. Many thanks to her and her husband Micheal for this opportunity that I hope we can take advantage of. We will just have to wait now and see how it all goes next month.
Thursday, April 16, 2009
On the road again.
Wednesday, April 8, 2009
Just another week in the life.
Had a somewhat rough week, but feeling much better today. It all started on April 1st, no joke, when I was just not able to keep anything down. I was worried I was becoming dehydrated, so I headed over to Piedmont to see if they could help me get some fluids and possibly figure out what was going on. I did not have a doctors appointment, but had been told in the past that if I just needed fluids, then to come right in. Hah, what a mistake that was. Got there at 9:30 a.m. and was told by the receptionist that my doctor was booked. I said no problem, I just need some fluids and will then be on my way. She told me that I had to see someone first before getting the fluids. I said no problem, and that I will take the first available appointment. The only opening was with a P.A. and I said sure. So, after a "2" hour wait I finally saw the P.A. I explained to her all of my recent problems with not being able to keep anything down during the previous four days as well as my concern for becoming dehydrated. Now, I have nothing against her, she was very nice and seemed concerned. But at the same time, she was very busy and was not at all familiar with me and my history and really did not seem to know how to deal with me. The lesson I learned, was to always make an appointment with a doctor. If not your doctor, then any doctor in the practice. She ended up giving me nothing for my vomiting, but did let me get a bag of fluids to help hydrate me. She also set up for me to get some fluids delivered to the house for home use, which was great idea. We finally left the hospital at 2:00 p.m. It was my fault to expect to be able to just show up and be taken care of. Oh well live and learn. Needless to say, my problems continued into the weekend and on Sunday, I was in extreme pain with acute abdominal craps. I had also not eaten any thing in a week. We talked to a couple of on call doctors and they said it was best for me to head on in to the emergency room. The pain reminded me of the time when I was 15 and had appendicitis. The doctors were worried of a possible blockage in my feeding tube or some type of hernia. The doctor at the emergency room was great. It was a short wait though, because they were relatively busy for a Sunday after noon. My pain had been reduced considerably since we left the house since I was able to give myself some of my own pain medicine. I was x-rayed for blockages, and he did not fine any. He then give me some nausea medicine as well as a heavy duty pain killer that had me making up words (wobley was a fave). I was feeling no pain by now of course. He then gave us a couple of prescriptions for the vomiting and nausea. No need to stay over night he said, so he sent us on our way. Not a bad emergency room experience at all if I had to rate it. Anyway, I have been slowly mending from this experience. Still not getting in enough calories, but the vomiting has stopped. My fluid intake has been fine and I am working on getting my calorie intake back up to where I will quit losing weight. I think I am down to about 190 scrawny lbs. Well, that is the latest in what seems like a never ending struggle to beat this. Hopefully with no more setbacks, I will be on my way to feeling a lot better by the end of week. Thanks to all of you out there who are thinking about us and hoping only for the best for us. Love will see us through.
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